Tuesday, March 15, 2011

Send A Letter & Possibly Save A Life

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On February 10, 2011, Representative Doris O. Matsui (D-CA) formally introduced the “Bone Marrow Failure Disease Research and Treatment Act...
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Saturday, March 12, 2011

Summation - Death of People! & Civil Rights?

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Send a letter to your Senator : AAMDS.org ; Donate to AAMDS . In addition to revocation of collective bargaining rights, Governor Walker als...
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Dear Senator McCain:

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Senator McCain: Last year I almost died from a bone marrow failure disease. Because of research they found out that I had Aplastic Anemia. B...

U.S. Held In Highest Regard For Cure

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If there will be a cure found for Aplastic Anemia, and we believe that there will one day be a cure, that cure will come from the United Sta...

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Read more about an issue by clicking on a link below. For Advocacy issues (where we suggest you take action with your elected officials) you...

Who Is My Senator?

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Who is your Senator? Look it up at Senate .

Strike Planned

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As the old phrase states: Extraordinary times require extraordinary measures. These are indeed extraordinary times in Wisconsin. The Budge...

URGENT - WRITE TO SEN JOHN MCCAIN BEFORE HE KILLS SOMEONE YOU LOVE

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Here, we are reposting with permission a letter from a woman inflicted with Aplastic Anemia, PNH and Leukemia cells. If you haven't writ...
Friday, March 11, 2011

Wisconsin Bill Passes

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Wisconsin passes the bill to remove collective bargaining rights AND DIRECTS THE DEPARTMENT OF PUBLIC HEALTH SERVICES TO REVIEW AND REFORM M...
Friday, March 4, 2011

"Recall Walker" Effort Begun

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Under Wisconsin laws, a Governor can be recalled if 25% of the voting population that voted him into office signs a petition. That effort ha...
Friday, February 25, 2011

28 February 2011 is Disease Day

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February 28, 2011 is Rare Disease Day. An estimated 30 million people are affected by one of about 7,000 rare diseases. Take a minute to pra...

$597 Per Voter Balances The Budget

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Someone suggested that we just split the cost of balancing the budget, and move on with life. Wisconsin reported a population of 5.6 million...

A State Doesn't Live on Fed Aid Alone

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Wisconsin had long been a thriving industrial state and the home to some of the top manufacturing companies in the nation. Wisconsin's f...

Peaceful, But Tense

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At 10 East Doty Street, an office building just 'off of the square' and a stone throw from the capitol building, protestors marched ...
Thursday, February 24, 2011

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One of the side effects of prolonged steroid usage such as a treatment for acute or chronic graph-versus-host disease is the possible inflic...
Wednesday, February 23, 2011

Walker's Bill Proposes Permanent Changes

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The items in Walker's bill in assembly at this moment are for permanent changes to Wisconsin laws. The proposed changes will not end wit...

Announcement of Recall Effort Ineffective, or Not?

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Americans Against Immigrant Amnesty has filed electronic registration under the name American Recall Coalition in an effort to recall the ei...

Buffalo Beast

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Walker talks offline to assumed supporter, BuffaloBeast reports it. Unfortunately, pinging that site shows that it was taken offline. The c...

Contact Walker - Serve Wisconsin

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Walker's contact information is: Office of Governor Scott Walker 115 East Capitol Madison WI 53702 Email: govgeneral@wisconsin.gov Phone...

Medical Assistance Reform = Death Sentences By Legislative Pens?

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An Arizona man was denied a liver that had been type-match perfectly to him after it was delivered to the hospital where he lay waiting for ...

Solidarity

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Firefighters joined teachers at the capital to protest Governor Walker's bill that removes some of the Teacher's Unions collective b...

2/3 Vote Signed Into Law For Tax Rate Increases

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Current Wisconsin law requires a simple majority to pass tax rate increases. Governor Walker signed a bill on Tuesday, February 22, 2011, re...
Tuesday, February 22, 2011

Walker Addresses Wisconsin

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Walker's address to Wisconsin .

One Life Matters - Aplastic Anemia Research: National Guard Preparedness

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One Life Matters - Aplastic Anemia Research: National Guard Preparedness

Doctor's Note Might Get Jail Time

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While teachers and the Teacher's Union are considering their options, the Governor has some answers. One of the protestors claimed to be...

Walker Blocks Solidarity Website

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Walker is accused of blocking a website that was being used to organize protestors. Walker says, "I didn't block the website."...

National Guard Preparedness

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Although Fox 11 reports that a spokesperson for the Wisconsin National Guard admitted that the guard was visiting prisons, it was merely in ...

Walker's Medical Assistance Bill May Affect Helpless

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Neatly tucked away in the confines of obscure language is the Medical Assistance reform portion of Walker's bill that if read closedly r...

Public Assistance Reform under Walker

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Walker's bill provides appropriation of TANF program funds from Federal Government: PUBLIC ASSISTANCE Reflecting the receipt of emergenc...

Walker's Medical Assistance Reform Act

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Walker's bill on Medical Assistance Although the language is illusive, the outcome is this: current law requires changes to Badger Care ...

One Life Matters - Aplastic Anemia Research: Walker Medical Assistance Hidden Agenda

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One Life Matters - Aplastic Anemia Research: Walker Medical Assistance Hidden Agenda

Insurance Saves Lives

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As Aplastic Anemia progresses to Severe Aplastic Anemia and then to Very Severe Aplastic Anemia, the patient will ultimately become 'dis...

Leading To BMT

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Aplastic Anemia is a bone marrow failure disease in which the blood stem cells in the bone marrow fail to produce sufficient life-sustaining...
Saturday, January 1, 2011

Federal Poverty Income Levels - Wisconsin 2011

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Federal Poverty Levels (FPL) The following income levels are used to determine enrollment for BadgerCare Plus.  To see if you may ...
Saturday, December 19, 2009

Hickmann Catheter Infection

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Can an infection develop in the Hickmann catheter and not show up in a grown culture or on a slide? Yes. Contrary to popular belief, infecti...
Saturday, October 17, 2009

Lung Injury After Transplant

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Transfusion related acute lung injury (TRALI) is an uncommon but potentially fatal adverse reaction to transfusion of plasma containing bloo...

Misdiagnosed Aplastic Anemia

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Hairy cell leukemia (HCL) is occasionally misdiagnosed as aplastic anemia when only a few leukemic cells are present in the circulation. Her...

Cyclophosphamide Results

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OBJECTIVE: To determine if high-dose cyclophosphamide is an effective therapy for children with refractory severe aplastic anemia (SAA). BAC...

Cyclosporine Warning

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[Posted 07/14/2009] The FDA is requiring the makers of certain immunosuppressant drugs [Sirolimus (Rapamune), Cyclosporine (Sandimmune and g...
Friday, October 16, 2009

TOP CANCER HOSPITALS WITH APLASTIC ANEMIA FOCUS

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U. S. News publishes the top cancer hospitals list: http://health.usnews.com/health/best-hospitals/cancer-hospital-rankings/ Mayo Clinic, Ro...

A Study - Transplant Treatment Severe Aplastic Anemia - Journal of American Society of Hemotology

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Severe aplastic anemia: a prospective study of the effect of early marrow transplantation on acute mortality BM Camitta, ED Thomas, DG Natha...

The Aplastic Anaemia–Paroxysmal Nocturnal Haemoglobinuria Syndrome

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http://bloodjournal.hematologylibrary.org/cgi/reprint/48/1/63 (2007 article – the key to successful treatment according to the study is earl...
Thursday, October 15, 2009

Clinical Definition of Severe Aplastic Anemia

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Severe Aplastic Anemia is defined as follows: Bone marrow cellularity < 25%, or marrow cellularity < 50% but with < 30% residual he...

Allogeneic Stem Cell Transplant

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What is a stem cell transplant? Most stem cells are in your bone marrow. You also have some that circulate from your marrow into your bloo...

Aplastic Anemia References

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Ades L, Mary JY, Robin M, et al. Long-term outcome after bone marrow transplantation for severe aplastic anemia. Blood. 2004;103:2490-2497. ...

Research In Treatments of Aplastic Anemia

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In addition to bone marrow transplants (the preferred method of treatment), supportive treatments and immune system suppression, advancement...

When Transplant Treatments Fail

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Sometimes the first treatment isn't successful and will need to be repeated. Often the second treatment will be effective, even if the f...

Aplastic Anemia Treatment

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This information represents the views of the doctors and nurses serving on the American Cancer Society's Cancer Information Database Edi...

Bone Marrow Transplants

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The bone marrow—the sponge-like tissue found in the center of certain bones—contains stem cells that are the precursors of white blood cells...

Aplastic Anemia

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Aplastic anemia is a disorder in which the bone marrow greatly decreases or stops production of blood cells. Description The bone marrow ...